I sent this email today, and wanted to share it with you all. If it were not for Dr Rapaport I don't know where I would be. Whilst i never actually met or spoke to him, by using the resources he made available, I was able to mentally commit to my recovery and stay off steroids permanently.
Dear Dr Rapaport,
My name is Josh Strawczynski from Australia and I was a sufferer of Red Skin Syndrome. Thanks to finding information that you published and the many other people suffering from this alfiction, I have been off steroids for 13 months and am now 95% back to normal. Whilst there is still a little dry skin and occasional rash on my chest, my life is back to normal and nobody except me is any the wiser.
I can't thank you enough for providing your research to the global community. If it were not for you I would still be searching for a miracle cure to something that my doctors and dermatologists were inadvertently doing to me. I consider myself extremely fortunate to have found you and your work and will remain indebted to you for all my days.
In my recovery I have kept a blog, mapping the progress with images and videos and through this have made contact with many many other sufferers, and helped to diagnose a few people also in the same boat. It's only a drop in the ocean, but I'm glad to be sharing your work to help others and will continue to support as best I can. My blog is http://redskinrecoverydiary.blogspot.com and as I said, there is excellent footage and imagery there. I'm also a public speaker and insanely positive about life and the whole recovery process, so if there is anything in there that can help you, by all means you have permission to share it.
I just wanted to drop you a line to say thank you and if there is anything I can do to help, just let me know.
I'm was 28 years old and had been recommended topical Cortisone by dermatologists since I was 13, because of this my skin became persistently red across my face, arms and neck.
The solution is to cut the cortisone completely, but this process takes between 9 months to 4 years to recover from and came with many horrific side affects.
The video above explains exactly what has caused the red skin, swelling and many other terrible symptoms that I've battled for the last 10 years. You can view all the posts on the blog by using the blog archive further down the page.